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Final Program


Schedule at a Glance
Legend
Program: Scientific Session
General Topic: ARP

Translating Research into Care: Effectively Disseminating Research Findings to Patients

Tuesday, October 28, 2025
4:00 PM – 5:00 PM Central Time

    Moderator(s)

  • Cheryl Crow, OT

    Arthritis Life
    Bellevue, Washington, United States

    Disclosure(s): AbbVie/Abbott: Independent Contractor (Terminated, January 22, 2025); Amazon: Royalties (Ongoing); global healthy living foundation: Independent Contractor (Terminated, January 31, 2025); Google Ads: Royalties (Ongoing)

  • Priscilla Calvache, MSW, LCSW

    Hospital for Special Surgery
    New York, New York, United States

    Disclosure information not submitted.

For patients to make informed decisions about their treatment and self-management, it is essential that they understand the latest research on their conditions. Disseminating study findings to patients—the individuals most affected by the results—has become an ethical imperative. Since research often involves patients, they have a right to be informed about its outcomes. However, academic practices frequently fail to incentivize the sharing of relevant, evidence-based information with patient communities or address widespread misinformation. In this session, three panelists will discuss the critical importance of researchers and clinicians dedicating time and effort to inform patients about research findings. They will share strategies for tailoring dissemination efforts to maximize impact and reach, and examine the time and resources needed for these initiatives. The session will also emphasize the need to translate research into accessible, patient-friendly language, and explore the unique challenges and opportunities in empowering various patient groups, particularly teens and young adults, during their transition stages.

Learning Objectives:

  • Recognize the importance of disseminating research findings to patients and how this patient engagement enhances outcomes and empowers informed decision-making
  • Discuss strategies for tailoring research dissemination efforts to maximize reach, impact, and accessibility, including how to translate complex research into patient-friendly language
  • Examine strategies for actively engaging patients in the dissemination of research findings to empower informed treatment choices and enhance self-management decisions

Presentations:

  • 4:00 PM – 4:20 PM Central Time
    TBD

    Speaker: Jasvinder Singh, MD, MPH – Baylor College of Medicine

  • 4:20 PM – 4:40 PM Central Time
    TBD

    Speaker: Kristine Carandang, PhD,OT – Young Patients' Autoimmune Research & Empowerment Alliance

  • 4:40 PM – 5:00 PM Central Time
    TBD

    Speaker: Shelley Fritz, MS (she/her/hers) – Global Healthy Living Foundation